News and activities from MD Europe

The very first Swedish myotonic dystrophy meeting took place in Göteborg! With the help of MD Europe we could organise this meeting where information was shared amongst patients, doctors, EuroDyma and MD Europe.

Lots of activities for young and old with signposted routes, breakfast buffet, summer bar. children's workshops (dance, music, keychain making), mini disco, life performances and a BBQ. All proceeds go directly to fund research into myotonic dystrophy.

The third edition of our annual walk. This time, it winds through the beautiful Ouwehands Zoo. Mark your calendars for next year: Sunday, June 20, 2027.

On June 20, 2026, anyone with a family connection to MD was informed about developments regarding trials, emerging technologies, and what follows the trial phase. This event was organized in collaboration with Spierziekten Nederland and the Beatrix Spierfonds, and was made possible by the VriendenLoterij.

On Sunday, January 25, 2026, Davy Lo and his girlfriend Kimberley organized the "Strength & Connection" benefit event. It was a major event featuring a wide variety of artists, raising no less than 7,000 euros for the foundation!

Watch the aftermovie of this congress now:

On 29 February, the MD gathering took place in Amsterdam. Watch the full recording of this evening here.

On 15 May 2024 there was an evening full of entertainment with the Ladies Circle in Laren. During the event, a cheque for 14,500 euros was presented to Stichting MD. Fantastic!